A THREE-year-old girl with a rare brain condition has rode 90 laps of the Rhyl caravan park her family stay at as she tries to help save the charity which has supported her from closure.
Evie Withington, from Great Sankey, Warrington, has been diagnosed with AARS1, which mum Claire said prevents her from sitting up, talking or walking properly.
Her family own a caravan at Terfyn Pella Caravan Park in Rhyl, which Evie has been riding around in a mini Land Rover to help raise money for Zoe’s Place Baby Hospice.
The charity needs a new home in Liverpool, as the lease on its current site runs out next year, and requires £5million to build a new facility that will mean it can stay in the city.
Evie regularly receives care at its hospice in Liverpool, as well as at Alder Hey Children's Hospital.
Claire said: “We have been fundraising as a family since April. Evie had even been sponsored by Hatfields Land Rover, who donated a car for her friends to join her doing laps.
“It’s so important now to spread the word and raise money. We use Zoe’s Place for vital respite, as our daughter has a rare genetic brain disorder which only four people have in the UK.
“The service Zoe’s Place provides is such a lifeline. We get so much from the service; it’s not only respite, it’s like a second home.
“They even do things for parents such as massage therapies, and sibling days to help the wider family.”
You can also donate to the JustGiving page Claire set up by visiting: www.justgiving.com/page/claire-withington-1712740635103.
Zoe’s Place Baby Hospice provides respite, palliative, and end-of-life care to babies and children aged between zero and five, with life-limiting and life-threatening conditions.
The hospice works to ensure that children who are unwell can enjoy the best possible quality of life possible, while also supporting their families along the way.
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